I was prescribed Sertraline (Zoloft) in 1998 when I had postnatal depression. I was told to take it for a year to 18 months. I went from deep depression/anxiety to euphoria in the space of about two weeks, I felt pretty damned fantastic, there was nothing I couldn’t handle. As time went on I continued to feel well but my emotions were dampened down, so I was functioning well, no depression, but no “joy” either. After a few months of feeling well I decided I didn’t want to be on Sertraline anymore, didn’t read the patient information leaflet or talk to a doctor, not that that would have helped anyway. I just stopped taking them. My head felt terrible, it began to feel water logged, if I turned my head there was a time lag between my eye balls catching up with the fact that my head had turned, so dizzy, gradually intense sadness would kick in, really really intense sadness and anxiety, oh the anxiety, pumping adrenaline and nerves shot to bits. I went back on the Sertraline.
The doctor told me to do the alternate day thing, alternate days for a fortnight,then every third day for a fortnight, then one tablet a week, I did this various times over the next few years to no avail. I tried a pill cutter and halving the tablet, it wouldn’t break down easily without crumbling so that was unsuccessful. Every time I tried something, I ended up in worse shape than the time before, it was all getting steadily worse. I tried meditation, healing, exercise, cognitive behavioural therapy, counselling, fish oil capsules, NOTHING touched it. I pressured my surgery to refer me to a psychiatrist for advice,but the psychiatrist had no clue and could only recommend switching to another drug. I did switch to Citalopram for a while, and Mirtzapine, I felt constant fatigue on Mirtzapine, and then back to Sertraline. Yet another psychiatrist recommended halving my dose of Sertraline and taking diazepam to mitigate the withdrawals, so replace one powerful drug with an even more powerful addictive drug.
This is my description of how withdrawal felt from my blog, I only recently found out that what was happening had a name,akathisia:

“5am and for about the 3rd night in a row I’ve barely slept, I can’t stop the adrenaline pumping round my body, my stomach is tightly knotted, I’ve barely been able to eat properly it makes me feel sick. I’m clammy, sweating and crying and P is trying to reassure me, but he has to go to work. I get up and drag myself through all the motions of the day and making sure boys get to school, I feel like the living dead, I make sure they get fed and make sure they and no one else is aware of what’s going on, I don’t hang around at the school gates. Oh I do kind of tell a few people I’m not really feeling right but I play it down.
The constant adrenaline is tormenting me on the inside and I can’t stop it.It’s been building up over a period of months and I’ve been fighting and fighting the feelings but it seems to have reached a peak of exquisite torture.It’s like being at the top of a roller coaster that never stops. Someone else mentioned birdsong, and it was a funny thing, the torture was worse in the mornings and over the summer months while it was slowly building, birdsong in the morning outside the window had become a kind of torture as well. I had to go to work part time and God only knows how I managed it. I had taken my last Sertraline tablet months ago, and come off it as per the doctors instructions, and now my depression/anxiety was back tenfold to punish me for daring to presume I could stop taking it. I must be wired up wrong, no one else feels like this do they? What is wrong with me? Maybe I really am insane, maybe I just can’t cope with life without my tablets, how come everyone else can cope with life, and I can’t? There must be something fundamentally wrong with me. By now the Orwell Bridge was beginning to look a bit attractive and I just wanted to escape the adrenaline surges torturing me, my nerves were in shreds”.
This was 2003,at the end of 2003 I gave in and went back on the sertraline.

In 2006 I attempted another withdrawal, but at the same time we found ourselves going through a stressful life event, I tried to tough it out but ended up back on the Sertraline again.
So here I was, several years later and no further forward, and not for wont of trying! Everytime I went in a book shop or library I would try and find anything I could about antidepressants and depression, but nothing really enlightened me. I rummaged around on the internet but couldn’t find the answers. Until one day, I was browsing around Waterstones, and “Coming off Antidepressants” by Joseph Glenmullen jumped out at me, (this book is now called "The Antidepressant Solution"). I read it avidly, and discovered TAPERING!!! But, all the examples in the book referred to liquid Seroxat or Prozac, I was really upset to find Sertraline was not available in liquid form. Armed with my new information about the simple concept of tapering, further digging led me to Dr Healy’s protocol of switching to the equivalent dose of liquid Prozac. These two pieces of information became my secret hope, I latched onto them. I decided to take a leap of faith and switch to liquid Prozac. At the beginning of 2007 I marked up my calendar with a schedule, I was going to go down from 5ml to 4.90ml the first week, 4.80ml the next week and so on, as my sons would say “epic fail”. By about mid February the nightmare was unfolding again and I had to give in and go back to the top of my Prozac dose, I was devastated.
Still I hadn’t given up hope, P was sympathetic but he couldn’t understand why I didn’t just give it up and accept I “needed” the drugs like a diabetic needs insulin. After lots more research, and P having interesting and enlightening conversations with a client who was a pharmacist about my problem, I started my taper again in May 2008, this time much much slower and here I am four years later down to 1ml liquid Prozac and still sucessfully tapering. It has needed a lot of self-discipline. I kept this blog/diary of my progress; I’ve been amazed to meet a few others who have been tapering longer than me. Nowadays my withdrawals are fairly benign, but I still feel a bit scarred from the experience,the akathisia has left me still feeling like my nerves are quite raw and very close to the surface but I can live with that now.
There is a huge assumption that these drugs are benign and harmless, they are not; they can cause extreme agitation and internal torture. They are dished out like smarties and people left to deal with the results. Starting them is like playing a game of Russian Roulette, you might be a lucky one who can take them and come off them with ease, or you might not. My understanding was that they were meant to be taken for only a year or so after you feel “well” but many many people are stuck on them for years or forever, I know many people who’ve given up hope of coming off SSRI’s and I hear many people say “oh I’ll be on these the rest of my life”. There is NO support or advice in place through doctors or psychiatrists on how to taper safely off the drugs.....if anyone does find any help in the UK, please let me know, although it’s a bit too late for me now as I’ve almost done it myself, but I know a lot of other people who might like to know!

Showing posts with label akathisia. Show all posts
Showing posts with label akathisia. Show all posts

Monday, 29 October 2012

C'mon Inner Peace I Don't Have All Day!!

The people who mentioned it gets hard near the end, they were not wrong!!  Anyway I realised this blog was turning into a right misery pity fest so I want to turn it around again into a more positive story of recovery and celebrate the fact that I have in fact come a long long way even if there is still a bit or work to do.

I’m getting the adrenaline surges I used to get years ago when I did cold turkey but not as severe, it becomes a bit of a downward spiral because adrenaline surges means it’s hard to relax/sleep and in turn the tiredness/exhaustion makes the surges feel worse and more desperate; the one positive thing about adrenaline surges is that they appear to eat calories and I can now eat cake and lose weight.!!Has to be some benefit doesn’t there? Yesterday I had a couple of strong coffees in the morning and couldn’t help but notice how very on edge I felt an hour or so later, so I guess that’s something I’ll have to cut down or eliminate, hopefully temporarily. I have taken some advice and this is the positive action I am taking:

       Out with the bungee jumping


       Out with the trips to Alton Towers, no more Oblivion for me, at least for the time being

Cut down on tea and coffee

 
And:

       Replace tea and coffee with chamomile, green and rosehip tea (boring but soothing)

Eat healthy

Magnesium citrate (was already taking magnesium but apparently magnesium citrate is much better absorbed and is good for the nervous system and muscles)

Melatonin (good for sleep)

Learn about Mindfulness, “Wherever You Go There You Are” on order.

Keep up with the exercise, sadly weather for cycling is not good but I still have the X trainer.

Continue to appreciate my caring and supportive husband who worries about me, and my funny affectionate sons.

 I’ve been trying to unravel whether this is “withdrawal” or mind and body rebelling against the crutch I’ve had for so many years now disappearing, and even whether I ought to up dose a bit or tough this out. At the moment I’m going to stay at this dose, take positive action as above and mull over how to proceed in the future.


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Thursday, 2 February 2012

Akathisia - a Side Effect of SSRI's, Withdrawing Too Fast off SSRI's, or Cold Turkeying off SSRI's

Summer 1994

Coming back from a gathering of mums and babies, post natal NCT support group, in reality the group wasn’t very supportive, there was rather a lot of competitive mumdom going on, other babies seemed to be sleeping through contentedly, learning the alphabet, names put down for private school already, ok I’m exaggerating a bit.


The mum I was getting a lift home with, our two babies in their seats in the back, I had more of an affinity with, our babies were not so easy and we didn’t pretend otherwise, and neither of us was finding new motherhood a breeze, and we both had money worries. In hindsight I know I was depressed and living with my emotions very raw and close to the surface but for me this was a very closely guarded secret but I think the other Mum sensed it. She was more open about her feelings, at least to me anyway, on that drive home she suddenly let rip, it all came tumbling out, how depressed she felt, her resentment towards the other Mums in the group, the medication she was on, how life was a constant uphill battle managing the baby, her dog, her husband, anxiety about going back to work and the sleepless nights, and the medication she was on. She told me that she often had thoughts when she was driving of just ramming her car into a lorry or car in front deliberately to escape her life.

December 2003 and Feb 2007

5am and for about the 3rd night in a row I’ve barely slept a wink, I can’t stop the adrenaline pumping round my body, my stomach is tightly knotted, I’ve barely been able to eat properly it makes me feel sick. I’m clammy, sweating and crying and P is trying to reassure me, but he has to go to work. I get up and drag myself through all the motions of the day and making sure boys get to school, I feel like the living dead, I make sure they get fed and make sure they and no one else is aware of what’s going on, I don’t hang around at the school gates. Oh I do kind of tell a few people I’m not really feeling right but I play it down. The constant adrenaline is tormenting me on the inside and I can’t stop it. It’s been building up over a period of months and I’ve been fighting and fighting the feelings but it seems to have reached a peak of exquisite torture. It’s like being at the top of a roller coaster that never stops. Someone else mentioned birdsong, and it was a funny thing, the torture was worse in the mornings and over the summer months while it was slowly building, birdsong in the morning outside the window had become a kind of torture as well. I had to go to work only 2 days a week and God only knows how I managed it. I had taken my last Lustral tablet months ago, and come off it as per the doctors instructions, and now my depression/anxiety was back tenfold to punish me for daring to presume I could stop taking it. I must be wired up totally wrong, no one else feels like this do they? What is wrong with me? Maybe I really am insane, maybe I just can’t cope with life without my tablets, how come everyone else can cope with life, and I can’t? There must be something fundamentally wrong with me. By now the Orwell Bridge was beginning to look a bit attractive and I just wanted to escape the adrenaline surges torturing me, my nerves were in shreds.



Broken, exhausted and shaken I reluctantly started taking the Lustral again and gradually started to feel more “normal”. Obviously there was something wrong with me and I needed Lustral to help me function. How come though I hadn’t needed Lustral to function before 1998?

Nowadays my withdrawals are almost but not quite non existent, the tsunami that is akathisia has long since washed away leaving me just a bit more nervy and more vulnerable to stress, much calmer but aware that adrenaline is always not far from the surface, and still trying to hide it and not always succeeding.

I’ve just finished reading Ann Blake Tracey’s book “Prozac Panacea or Pandora?”, I’ve heard the word akathisia in relation to antidepressants in recent years but I had never been quite sure what it was or that it applied to me. This book included loads and loads of anecdotes from people and information about akathisia and I actually felt emotional reading it, there was a name for it and I never knew at the time and I’m absolutely certain my doctor didn’t know either.

Prozac Reduction Timeline
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