I was prescribed Sertraline (Zoloft) in 1998 when I had postnatal depression. I was told to take it for a year to 18 months. I went from deep depression/anxiety to euphoria in the space of about two weeks, I felt pretty damned fantastic, there was nothing I couldn’t handle. As time went on I continued to feel well but my emotions were dampened down, so I was functioning well, no depression, but no “joy” either. After a few months of feeling well I decided I didn’t want to be on Sertraline anymore, didn’t read the patient information leaflet or talk to a doctor, not that that would have helped anyway. I just stopped taking them. My head felt terrible, it began to feel water logged, if I turned my head there was a time lag between my eye balls catching up with the fact that my head had turned, so dizzy, gradually intense sadness would kick in, really really intense sadness and anxiety, oh the anxiety, pumping adrenaline and nerves shot to bits. I went back on the Sertraline.
The doctor told me to do the alternate day thing, alternate days for a fortnight,then every third day for a fortnight, then one tablet a week, I did this various times over the next few years to no avail. I tried a pill cutter and halving the tablet, it wouldn’t break down easily without crumbling so that was unsuccessful. Every time I tried something, I ended up in worse shape than the time before, it was all getting steadily worse. I tried meditation, healing, exercise, cognitive behavioural therapy, counselling, fish oil capsules, NOTHING touched it. I pressured my surgery to refer me to a psychiatrist for advice,but the psychiatrist had no clue and could only recommend switching to another drug. I did switch to Citalopram for a while, and Mirtzapine, I felt constant fatigue on Mirtzapine, and then back to Sertraline. Yet another psychiatrist recommended halving my dose of Sertraline and taking diazepam to mitigate the withdrawals, so replace one powerful drug with an even more powerful addictive drug.
This is my description of how withdrawal felt from my blog, I only recently found out that what was happening had a name,akathisia:

“5am and for about the 3rd night in a row I’ve barely slept, I can’t stop the adrenaline pumping round my body, my stomach is tightly knotted, I’ve barely been able to eat properly it makes me feel sick. I’m clammy, sweating and crying and P is trying to reassure me, but he has to go to work. I get up and drag myself through all the motions of the day and making sure boys get to school, I feel like the living dead, I make sure they get fed and make sure they and no one else is aware of what’s going on, I don’t hang around at the school gates. Oh I do kind of tell a few people I’m not really feeling right but I play it down.
The constant adrenaline is tormenting me on the inside and I can’t stop it.It’s been building up over a period of months and I’ve been fighting and fighting the feelings but it seems to have reached a peak of exquisite torture.It’s like being at the top of a roller coaster that never stops. Someone else mentioned birdsong, and it was a funny thing, the torture was worse in the mornings and over the summer months while it was slowly building, birdsong in the morning outside the window had become a kind of torture as well. I had to go to work part time and God only knows how I managed it. I had taken my last Sertraline tablet months ago, and come off it as per the doctors instructions, and now my depression/anxiety was back tenfold to punish me for daring to presume I could stop taking it. I must be wired up wrong, no one else feels like this do they? What is wrong with me? Maybe I really am insane, maybe I just can’t cope with life without my tablets, how come everyone else can cope with life, and I can’t? There must be something fundamentally wrong with me. By now the Orwell Bridge was beginning to look a bit attractive and I just wanted to escape the adrenaline surges torturing me, my nerves were in shreds”.
This was 2003,at the end of 2003 I gave in and went back on the sertraline.

In 2006 I attempted another withdrawal, but at the same time we found ourselves going through a stressful life event, I tried to tough it out but ended up back on the Sertraline again.
So here I was, several years later and no further forward, and not for wont of trying! Everytime I went in a book shop or library I would try and find anything I could about antidepressants and depression, but nothing really enlightened me. I rummaged around on the internet but couldn’t find the answers. Until one day, I was browsing around Waterstones, and “Coming off Antidepressants” by Joseph Glenmullen jumped out at me, (this book is now called "The Antidepressant Solution"). I read it avidly, and discovered TAPERING!!! But, all the examples in the book referred to liquid Seroxat or Prozac, I was really upset to find Sertraline was not available in liquid form. Armed with my new information about the simple concept of tapering, further digging led me to Dr Healy’s protocol of switching to the equivalent dose of liquid Prozac. These two pieces of information became my secret hope, I latched onto them. I decided to take a leap of faith and switch to liquid Prozac. At the beginning of 2007 I marked up my calendar with a schedule, I was going to go down from 5ml to 4.90ml the first week, 4.80ml the next week and so on, as my sons would say “epic fail”. By about mid February the nightmare was unfolding again and I had to give in and go back to the top of my Prozac dose, I was devastated.
Still I hadn’t given up hope, P was sympathetic but he couldn’t understand why I didn’t just give it up and accept I “needed” the drugs like a diabetic needs insulin. After lots more research, and P having interesting and enlightening conversations with a client who was a pharmacist about my problem, I started my taper again in May 2008, this time much much slower and here I am four years later down to 1ml liquid Prozac and still sucessfully tapering. It has needed a lot of self-discipline. I kept this blog/diary of my progress; I’ve been amazed to meet a few others who have been tapering longer than me. Nowadays my withdrawals are fairly benign, but I still feel a bit scarred from the experience,the akathisia has left me still feeling like my nerves are quite raw and very close to the surface but I can live with that now.
There is a huge assumption that these drugs are benign and harmless, they are not; they can cause extreme agitation and internal torture. They are dished out like smarties and people left to deal with the results. Starting them is like playing a game of Russian Roulette, you might be a lucky one who can take them and come off them with ease, or you might not. My understanding was that they were meant to be taken for only a year or so after you feel “well” but many many people are stuck on them for years or forever, I know many people who’ve given up hope of coming off SSRI’s and I hear many people say “oh I’ll be on these the rest of my life”. There is NO support or advice in place through doctors or psychiatrists on how to taper safely off the drugs.....if anyone does find any help in the UK, please let me know, although it’s a bit too late for me now as I’ve almost done it myself, but I know a lot of other people who might like to know!

Saturday 29 May 2010

Vivid dreams and emotions

I've been having such vivid and bizarre dreams and the other morning I woke up in tears but couldn't remember why!
I've also been feeling much more emotion coming back now and in a really good way because I think I have been emotionally a bit numb for so long. I'm finding myself easily moved by different things now and it's soooo good to have that feeling back!!

Sunday 16 May 2010

I feel SO much better now!

Phew! How nice to feel "normal" again instead of profoundly depressed and sad, at least I know yet again it is a withdrawal and I can "ride it out".

Friday 14 May 2010

That dream again

Yup I've had it again, in fact I think I've had it a few times lately, this time we were back at old two up two down first home, and it was a right mess.

Some reassurance was needed

 My question

I'll try not to ramble, I have been very sucessfully withdrawing from prozac (after 10 years of failed attempts). It's taken me two years to reduce from 5ml to where I am now at 2.60mls (that's how slow I've been taking it! All has gone well up to now, the past week I've been getting feelings of profound sadness a little anxiety, the waves come and go and feel like my old depression/failed withdrawal attempts in the past.


 Is this a withdrawal that will pass in time? or is this the real me? feeling a bit confused but rationally I think this is a withdrawal reaction but it's something I've not felt for a long time. Anyone relate?



The answer

**, this is normal in withdrawal/recovery . Your chemistry will be changing regularly and will do so even for years after you have totally discontinued the drug.



The difference now is it comes and goes, right?



I've never seen anyone go into a depressed state after stopping a drug unless it is stopped too quickly. This is a reaction of the biochemistry.



People have been sold a lie when they are told depression is genetic. It's not. Someone might say their mother was depressed and so is their sister. This is genetic only in as much as behavior is learned (children learn to mimic parents' reactions without knowing it so if mom is depressed children learn to be depressed). The other cause is poor diet. This makes all the difference in the world.



It is perfectly normal for people to experience a couple of periods of depression in a lifetime. An argument can be made for the use of this but that's a huge topic. Any doctor who has not been brainwashed by the drug companies who want you to believe the genetic lie so they can sell you drugs for life will tell you that depression is self-limiting. What prevents it from resolving in most people is nutritional and/or the unwillingness to meet life on life's terms (people who do this are usually people who believe that life is sometimes "unfair").



As I said, you'll feel many things at various times on this journey. Just ride it out. If it stays more than a couple weeks at most, check your diet and supplements. If this isn't it, increase the drug by one dose. This is sometimes necessary as you get into the lower doses. Don't stay long at the increased dose. A week or 10 days will be enough to get you unstuck. Then reduce again and you should be okay.



--C
 
and sure enough I do feel a lot better today, phew!

Monday 10 May 2010

Blah...

OK well for the past week I have been feeling really quite "blah", like a low level depression, no not really depression, well maybe but very mild and just kind of flat. Hope this passes soon, can't help wondering if it's here to stay but that's negative thinking we all know what happens when you get into negative thinking spirals.